NB. This particular section is only of relevance if you are very early on in the project planning process and can therefore afford some time to make enquiries about the availability of specific questionnaires as tools for your own research.
The general principle appears to be that fees are waived for non-funded research projects and all that is required is that a user agreement form be signed and sent to the relevant institute. Note, however, that questionnaires are not directly downloadable from the recommended site.
The Mapi Research Institute has designed an electronic database containing questionnaires which provide instruments (such as the Neuropathic Pain Scale and the Stroke Impact Scale) for measuring health status and quality of life. These are particularly useful in deciding how to design a scale from which patients should choose their individual responses. For a list of topics covered and information on obtaining your own copy of any particular questionnaire together with the relevant contact details please refer to the Mapi Research Trust PROQOLID home page. On seeking to access the full list under the header Instruments Distributed by Mapi Research Trust, you will be invited to register with the site. Registration takes about 20 seconds to complete and in return, you should gain access to a comprehensive library of previously used questionnaires.
Reviewed Methods for Measuring Health Status and Quality of Life by Margaret MacDougall is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
